My Pov: The 2015 Diabetesmine Invention Summit

The holidays made for a crazy schedule. Here are my thoughts on at the 2015 DiabetesMine Innovation Summit.

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I’ve followed the DiabetesMine Innovation Summit online since it's inception, together with this twelvemonth (thanks to receiving a scholarship from DiabetesMine,) I was able to wing cross province together with attend the 2015 DiabetesMine Innovation Summit, on November, 20th, 2015.  

The summit brought together all the telephone substitution game changers inwards the diabetes the world inwards all dimensions. Patient Advocates who alive amongst D 24X7, ‘designers of electrical flow together with hereafter devices, clinicians, R&D, Pharma Marketing, regulatory, groovy tech gurus,and more!

The agenda was jam packed together with much of the focus centered on the major challenges of living amongst diabetes (see amy’s slides,) together with usability factors beingness KEY. 

I LOVED that D patient challenges together with usability inwards blueprint took see stage!

Topics addressed harnessing the inventiveness of patients; behavioral aspects of living amongst a D 24X7, patient life hacks, blueprint aspects of D products, manufacture embracing the patient experience, getting the FDA onboard, together with D tech, merely to hollo a few. 

So much was discussed inwards what seemed similar a rattling brusk amount of fourth dimension together with my caput was spinning and still is, but inwards a swell way!

And every bit the twenty-four hr menstruum flew by, my hear went dorsum to the master Roche Diabetes Social Media Summit inwards 2009 - together with how manufacture was hesitant to engage amongst patients together with all things Social Media.

Now, six brusk years later, things possess got changed dramatically together with for the better. 

Patients together with manufacture are working together together with our diabetes voices are beingness heard! 

Some of the Speakers many talking points that possess got stuck inwards my caput long after the conference ended, include: 

 Chief Technology Officer of the the United States of America Department of Health together with Human Services, Susannah Fox’s telephone substitution banknote vocalization communication focused life hacks and usability, together with the patient every bit collaborator together with expert.
 When Susannah stated “the goodness to whatsoever status is the somebody who has the condition,” and talked about patients creating life hacks out of necessity because what they wanted together with needed didn’t exist, everyone inwards the room living amongst a chronic illness could relate. When she talked nearly dissimilar patient communities working together to larn the change, I kept thinking: YES, she gets it!  

Speaking of life hacks together with patient voices beingness telephone substitution - the Patient Voices Life Hack winners submissions (of which I was one,) where damn creative!   

SamePageHealth’s, Paul Ciechanowski discussion on the mental aspects of diabetes together with handling to assist patients successfully alter behaviors together with idea patterns, struck a chord. When Paul talked nearly the emotional hear trumping the rational mind, aka,
"I know what I'm supposed to do, but I don't create it,” every somebody inwards the room living amongst diabetes felt understood.   
Open Notes: Eileen Hughes presentation on Open Notes, a programme that allows patients across the province to possess got access to their clinicians notes on them, enabling them (us,) to larn active co-partners amongst their HCP through an online portal.  
Leading patients to larn to a greater extent than active participants inwards their disease, overall healthcare, together with treatments. Open Notes is a GAME CHANGER! 
Sidebar: Last year, my cardiologist’s notes on yours genuinely were transcribed wrong, together with my file mistakenly said I had a medical status that I didn't have.  
If I hadn’t asked for a physical re-create of my notes to survive mailed to me, (and followed upward that asking amongst a telephone call,) the error never would possess got been discovered together with my medical records would all the same survive wrong.
Once I notified my medical squad of the error, it took a calendar week to right  because the Doctor, Nurse Practitioner  together with transcriber all had to survive consulted. 
Open Notes would possess got made both the detection together with the correction of the error together with so much easier together with less fourth dimension consuming.  

Toronto’s Dr. Joseph Cafazzo, of the Centre for Global eHealth Innovation presentation "How the Industry is Embracing User Experience," had me nodding my caput amongst virtually everything he said, including how insulin pump interface is annoying together with how pump blueprint re: buttons together with command must survive designed to survive to a greater extent than user friendly. 

Another trial he mentioned was redesigned of the Target pill bottle yesteryear Deborah Adler, whose designed focused on highlighting drug hollo together with instructions, hence making it to a greater extent than slow for the patient to read/access medications at a glance, instead of the focus beingness on the pharmacy’s name.   

That trial brought habitation ane of his telephone substitution points re: the importance of empathy inwards blueprint - together with I agree. After all, empathy is telephone substitution inwards our lives together with it’s telephone substitution inwards the blueprint of technologies that allow us to alive our lives amongst diabetes. 

Jessica Floeh’s presentation successfully articulated something I’ve been bitching nearly for years - having a chronic illness shouldn’t hateful that nosotros should survive forced to article of apparel ugly diabetes accessories - My pancreas is busted, non my feel of style.  
Of course, Jessica expressed herself to a greater extent than eloquently together with professionally, pointing out that insulin pumps are solely designed yesteryear middle aged men who are OK amongst wearing dark clips on their pockets or belts together with right side yesteryear side to their iPhones. 
She also stated that device designers must include women amongst diabetes, who really article of apparel insulin pumps, exam their glucose, article of apparel CGMS, etc. 
Women possess got diabetes. Women article of apparel insulin pumps, together with so why aren’t nosotros included? 
Back Story: Jessica is quite the  Diabetes Designer herself. Creator of the HankyPancreas (which was also a yesteryear DiabetesMine Innovation Summit submission,)and old designer at Intel - wants designs for medical devices to survive to a greater extent than inclusive - representing all the humans wearing/using those devices - non merely the ones designing them. Hallelujah! 

VitalCrowd: Very Cool platform designed yesteryear t1 Anna McCollister-Slipp,  that volition engage patients together with researchers to comment together with brand suggestions on existing inquiry projects/designs together with come upward up amongst novel ones - I can’t hold off for it to conk live! 

The Diabetes Mine Usibility Innovation Award winners and runners-up included names that everyone living amongst diabetes are familiar with because their products together with services brand our lives easier. Checkout the winners, HERE. 

YYES, the Diabetesmine Innovation Summit was oculus opening, informative, together with incredibly validating every bit both a somebody amongst diabetes together with a Diabetes Advocate together with I am together with so incredibly thankful that I had the chance to attend. 

My cheers conk out to Amy together with the DiabetesMine squad for hosting the summit together with for the scholarship, together with every somebody who attended together with presented at the Summit. 
WELL DONE! 

Fore a to a greater extent than comprehensive await at the conference amongst links to the speakers together with slides, read Amy’s article, HERE.   For pictures of the event, Click HERE.